Academic and patient advocacy group collaborations in Dentatorubral-pallidoluysian atrophy (DRPLA)

Dentatorubral-pallidoluysian atrophy (DRPLA) is a rare progressive brain disorder that can impact children and adults. In children, DRPLA can lead to difficulties walking, talking, eating, epilepsy, and progressive intellectual deterioration. In adults, it manifests as movement impairment, talking and eating difficulties, and dementia or behavior changes. 

Redenlab are supporting communication testing and analysis in two multi-domain assessment studies. One, collaborating with Boston Children’s Hospital, Harvard University and The University of Melbourne to measure novel treatment outcomes. The second is a multi-national natural history study across North America and Europe run by CureDRPLA and Ataxia UK.

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